Every year we select from many, many applications, a family with a child that is in great need. We love to show our patrons who their donations are helping. The families like to share their stories…the ups and downs.
THIS YEAR’S RECIPIENT – MEET KENDRA
On November 25th, Kendra was taken to South Baptist Hospital in Plant City thinking that she was having a reaction to allergies. After several hours of being there and several tests later, the doctor came in and her mom was told that he believed Kendra may have Leukemia, and that he had arranged transportation to take her to St. Joseph’s Hospital in Tampa.
After multiple tests at St. Joseph’s Hospital, on November 27th , the doctor’s had diagnosed her with Leukemia. On November 28th, doctor’s took Kendra in to have a spinal tap and a bone marrow test. She then had a port put in her chest.
They immediately started chemotherapy treatments on Kendra as well. Kendra will have to continue the treatments for the next 27 months. She will have to go once a week for the first 6 months and then once a month for the remaining 21 months.
Kendra is not able to go back to VPK/daycare until after the first 6 months of chemotherapy treatment, as long as the doctor’s release her and say it’s okay for her to return. Her mother Rebeka has been working two jobs, a full time job and a part-time job so she could provide for Kendra. With all this she no longer works her part-time job. With Kendra having to go back for her chemotherapy treatments her mom will have a lot of time off from her full-time job as well. She is praying and hoping that Kendra stays as strong as she has been and that she makes a full recovery.
MEET LINCOLN AVERY DELUNA
My son, Lincoln Avery, has a rare disease that affects 1 out of every 50,000 male births. It is called X-Linked Myotubular Myopathy. This is a neuromuscular disease and is characterized by severe muscle weakness that affects his whole body. He is 22 months old and cannot walk, eat, or breathe on his own. He has a trach and is on a ventilator 24/7. He cannot swallow and therefore has a feeding tube. He requires around-the-clock medical care. Most children born with this disease do not live to see their first birthday. Because of this, we are constantly reminded of the fragility of life. The prognosis is not good, however, Lincoln gives us hope and inspires us to embrace life. He is our miracle.
I live for the day that modern medicine can heal his weak body. In the meantime, we live our lives minute to minute and soak up every precious moment we have. Lincoln is not only surviving- he is thriving! He is learning sign language and loves to read books! He enjoys music of all genres and loves to wiggle to the beat. Recently we shared a huge milestone in our journey: Lincoln took his first “steps” at home! We fought to get him a powerchair through Medicaid, funded by the State of Florida, and won! As a result, Lincoln now has some independence and can drive all around our house. It is the best feeling in the world to see him be able to safely interact with the world around him and gain some of that mobility that children so desperately need at this age. Lincoln is truly a fighter. Everyday he beats the odds. He is the love of our lives and our champion.
MEET HAYLEY RICHARDS
Hayley Richards was our first beneficiary. Bud Run 1 and 2 were devoted to her and her fight with luekemia. She will always hold a special place in our heart. Altough she did not survive, her memory lives on and reminds us to never give up our fundraising efforts. She will surely be missed.
MEET KYLE SEGER AND JOSH MORALES
These two little guys marked a great year for the Bud Run. We’ve been raising more and more money and were able to benefit two children. Josh Morales has had a rough start, but is very optimistic about his future. He has been diagnosed with Transverse Myelitis, Junvenile Diabetes and Mitochondrial Disease. Kyle Seger has been diagnosed with Muscular Dystrophy-Duchene’s disease. This disease will cause Kyle to be in a wheelchair by 13 unless a cure is found.
MEET ADRIANNA MINNINO
Adriana was diagnosed with Medullablastoma, a primitive tumor that develops in the back part of the brain and has undergone surgery to remove the tumor. She now faces radiation and chemotherapy 5 times a week for an entire year. The Mininno family did not have health insurance to pay her medical bills. We were glad for the opportunity to help her and her family out.
MEET COLE ROSANEICH
Cole was diagnosed with cerebral pausy. It affects about 2 in every 1,000 births. The disorder affects motor skills and can impair the ability to communicate. Cole is a very happy and loving child and won’t let his diagnosis rule his life.
MEET SHAWN COVIAS
You’ve heard it before. Leukemia. And it is most unfortunate when it affects kids because only 10% of children are afflicted with this diagnosis. Shawn is a very strong boy and has a very positive outlook. There is much hope for young Shawn and we like to feel that we were able to provide a little more of that hope thanks to our donors.
MEET THE BEUHLER CHILDREN
The Beuhler Children faced a life-altering event that no child should have to endure. They had lost both of their parents. The Bud Run decided to raise money and set up a college trust fund. We wanted to ensure that these children had a bright future ahead of them.
MEET WILLIAM THOMPSON
William Thompson is affected by a rare genetic disorder called Pfeiffer Syndrome. It affects about 1 in 100,000 births. It is characterized by the premature fusion of certain skull bones which prevents the skull from growing normally. This causes physical abnormalities affecting the face. The outlook for little William is good. The money that was raised will help him lead a good life.